Post by Lisa Petrison on Jul 24, 2011 13:32:38 GMT -5
Many people with neuroimmune disease have stated that they feel better in some locations than in others.
Some report feeling almost wholly well when they go some places. Others report getting much sicker (sometimes permanently) after visiting or moving to particular places.
The purpose of this board is to share information on the locations effect so that we can take better advantage of it. In addition, our discussions may allow us to learn more about whether the effect is shared by everyone with this type of illness, to understand what causes it, and to prompt researchers to look into it.
Neuroimmune disease includes myalgic encephalomyelitis (ME), chronic fatigue syndrome (CFS), chronic Lyme disease, fibromyalgia (FM), chronic inflammatory response syndrome (CIRS), and mold/biotoxin illness. People with these diseases are strongly encouraged to share their experiences in visiting or living in different locations, whatever they might have been.
It is possible that the Locations Effect applies to people with other diseases (such as autism/ASD, MS, ALS, Alzheimer's or Parkinson's) as well. Also, people with MCS (but not neuroimmune disease) usually report doing better in some locations than others, but whether good vs. bad locations are the same as in neuroimmune disease is unclear. Everyone is very welcome to share their experiences with particular locations and participate in the discussion, but please mention what illness/symptoms you have so that we can compare across diseases.
The main goal of this site is to share reports about specific locations. Please put these in the proper threads in the section "Location Reports."
The threads in the "Location Reports" section are for reports only, not for discussion. Hopefully this will keep the threads readable for people who are interested in learning about particular locations. The goal is for people interested in (say) Hawaii to be able to come to the forum and read 45 reports on the state, not 5000 pages of discussion on it.
Sections for discussion of the locations effect and other topics are at the bottom of the board.
Thanks in advance for sharing your experiences and participating in discussions here.
Welcome!
Best,
Paul (Pol) Beith
Lisa Petrison
Some report feeling almost wholly well when they go some places. Others report getting much sicker (sometimes permanently) after visiting or moving to particular places.
The purpose of this board is to share information on the locations effect so that we can take better advantage of it. In addition, our discussions may allow us to learn more about whether the effect is shared by everyone with this type of illness, to understand what causes it, and to prompt researchers to look into it.
Neuroimmune disease includes myalgic encephalomyelitis (ME), chronic fatigue syndrome (CFS), chronic Lyme disease, fibromyalgia (FM), chronic inflammatory response syndrome (CIRS), and mold/biotoxin illness. People with these diseases are strongly encouraged to share their experiences in visiting or living in different locations, whatever they might have been.
It is possible that the Locations Effect applies to people with other diseases (such as autism/ASD, MS, ALS, Alzheimer's or Parkinson's) as well. Also, people with MCS (but not neuroimmune disease) usually report doing better in some locations than others, but whether good vs. bad locations are the same as in neuroimmune disease is unclear. Everyone is very welcome to share their experiences with particular locations and participate in the discussion, but please mention what illness/symptoms you have so that we can compare across diseases.
The main goal of this site is to share reports about specific locations. Please put these in the proper threads in the section "Location Reports."
The threads in the "Location Reports" section are for reports only, not for discussion. Hopefully this will keep the threads readable for people who are interested in learning about particular locations. The goal is for people interested in (say) Hawaii to be able to come to the forum and read 45 reports on the state, not 5000 pages of discussion on it.
Sections for discussion of the locations effect and other topics are at the bottom of the board.
Thanks in advance for sharing your experiences and participating in discussions here.
Welcome!
Best,
Paul (Pol) Beith
Lisa Petrison